foliedemars: (Default)
Hi.

I hope everyone is ok.
foliedemars: (Default)
I guess we can say that this year has been pretty hellacious so far. I spent over four years warning people about Trump, but did they listen? Nooooooo. I’m overreacting, they said.

Well, fuck you.

We can only hope that the powers-that-be will do their jobs and charge everyone involved in the domestic terrorist attack on the Capitol, including the vile Congresspeople who are still walking free and causing trouble on a daily basis via social media.

I won’t hold my breath.

I have spent time at the hospital this month due to my kidneys and my digestive system failing in a painful and traumatic way. I was monitored by my aunt and uncle for a week after discharge, and now I am back home. I’m still in pain, but have improved.

I hope everyone received their gifts from the holiday wishes page. I know some of them were delayed on Amazon, but I do hope they arrived so please let me know if they didn’t and I can check into it. x
foliedemars: (Default)
I learned that my blood is ultra rare. I’ll post an interesting explanation soon, but the bottom line is that I am in the 6% of the world population that can donate to infants. It has been fascinating looking at the specifics, which I will share.

Additionally, I have not have covid. The antibody test was negative. I do plan to vaccinate as soon as possible in spite of the fact that I am high risk of terrible side effects due to muscular dystrophy. It is safe to say that corona would be a far worse fate.

The best news is that I lowered my cholesterol 51 points in four months. That really shocked me. Another seven points and I will be in normal range for the first time in years.

I’m wishing everyone the best in 2021.

Thanks

Dec. 18th, 2020 01:31 am
foliedemars: (Default)
I’ve received gifts from Holiday Wishes, and I just want to thank all of you lovely people who chose to brighten my day.
I have been so ill. I’m struggling with my muscle disease. But I’ll be back soon.
I will post pics of the gifts soon, too. ❤️
foliedemars: (Default)
Another friend with coronavirus. Things are pretty scary around here, folks. I almost feel like I’m simply waiting for my turn to get it but I’m trying my best not to. Staying the hell away from humans helps, of course. Sadly, this friend got it from an unavoidable coworker.

No more updates being received about the Aunts, so I can only assume they have recovered.
foliedemars: (Default)
Thanks [personal profile] conuly  for introducing me to Staunch Book Prize.

I appreciate that someone recognized the issue and called it out.
foliedemars: (Default)

I get that he lived a long, good life,
but this hurt, and Cancer sucks.
foliedemars: (Default)

I have wanted to say something, but it wouldn't be adequate.

This is a very nice tribute to RBG, followed by additional videos of interviews if you choose to view them.

Rest in peace, and thank you for being a "notorious" heroine to so many.


foliedemars: (Default)
I posted a wish list on @Holiday_Wishes, and I appreciate that they do this each year. <3

It has been a rough 2020 for most of us, but things are going to get better.

We must believe that, friends.

Talk to you soon.


In shock

Dec. 1st, 2020 10:19 pm
foliedemars: (Default)
My next door neighbor has collapsed and died. 
foliedemars: (Default)
If I see a single CHRISTmas (note the caps) rant against retail workers or pretty much anyone else, I’m blocking. Holidays literally means Holy Days. You’re not God’s favorite for saying Merry Christmas and being a turd to people who don’t. Get over it. I’m done with willful ignorance.
foliedemars: (Default)
I meant to follow up here. I had two tests. First one was negative, second one I never received results on because my county health department is careless.

I don’t have it, I’m sure. I’m social distancing from absolutely everyone regardless. I can’t trust anybody.

I spent Thanksgiving alone, and will be doing the same at Christmas/New Years.

2020 sucks.

Coronadrama

Nov. 6th, 2020 10:26 pm
foliedemars: (Default)
The car I'm driving broke down, so I spent a couple of days with my aunt and uncle who own the car. It's the first time I've seen them in a year. We got the car straightened out, and it is thankfully running again.

This was on the 3rd.

I received a text from my brother last night, the 5th, that my aunt was diagnosed with COVID. It turns out, she and her sister and cousins decided to get together and hang out at the flea market a few days ago.

Of all of the places to go during a rising pandemic...THE WALL TO WALL PEOPLE, GIANT ASS FLEA MARKET.

They're in their 70s. I hope they'll be ok.

But I am also incredibly pissed off at them. I got in my aunt's car on the 3rd, not knowing that just a couple of days prior, she and her relatives were all in there with fucking Corona. The kicker is that they can accept treatment because they don't have my rare disease, but if I take steroids or antibiotics or antivirals or a large number of other medications, I can die right then and there. That's the nature of my neuromuscular disease. Anything that inhibits neuromuscular transmission and drops my potassium level is deadly to me. So if I get COVID, it's a death sentence. Even Periodic Paralysis Association made it clear to members that we must avoid it at all costs, because we are especially doomed if we get it.

Thanks a whole damn lot.

I don't have symptoms at this time, thankfully. I'll carry on with life inside my apartment over the weekend, and if I feel any change for the worse at all, I will go to the closest curbside testing location to get swabbed.

I already had to get tested in September after using the restroom belonging to someone who was diagnosed with COVID three days later. I had not intended to enter their home (was dropping something off) but had a digestive emergency. That was a stressful week.

And now this. I truly cannot trust anyone. I'm isolating again until further notice, and will be spending the Holidays alone.


foliedemars: (Default)
Third one in three months. Egads, I’m exhausted!

I’ll be back with a better update when power is restored. 

Well...

Oct. 26th, 2020 06:51 pm
foliedemars: (Default)
2020 can go straight into the lowest pit of Hell, amirite?
foliedemars: (Default)
Hey folks in the know,

Is it possible to attach my own domain name to a DW blog? For example, if I bought www.foliedemars.com, would I be able to auto-direct it to my blog here? 

The url is hypothetical. I don’t plan to buy it. Just asking if it’s possible, and how.

Thanks!

Edit: Ok, it looks like this isn’t going to be the proper place for what I need to do. Thanks for the comments! Some real updates are coming up! xo
foliedemars: (Default)
In my settings, I’m supposed to be getting emails when friends comment on my page. But I’m not. I can’t figure out what went wrong there. At any rate, it’s the reason why I don’t know about comments unless I login. Sorry about that, and I thank you all for taking the time to care.

I’ll get back to writing soon. I’m really just incredibly tired from my latest bad episode (gastroparesis, which led me to having to be transported by ambulance to the hospital). I have a very complicated relationship with my body. I’ll elaborate on my conditions, but it will have to wait till another time.

It’s going on 1:30am here, so I’m off to bed, but I’ll talk to you again before the end of the month. xoxo

foliedemars: (Default)
Oh DW, don’t hate me for being away so long. I’m going through hell this year. I’ll be back asap with real updates. A thousand hugs to you all.
foliedemars: (Default)
Have you ever been so struck by someone’s beauty that you wept?

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Venteux Mars

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